Dear body, stop acting up and do something right for once. This latest batch of tests are horrendous. Study next time, kthxbai. PS study white blood cells the most. you failed miserably on this one. 2.2 is UNACCEPTABLE young lady. ...Critically low. You know what this means? most likely another bone marrow study. :\
while I'm here, anyone A+ for blood have an extra kidney? mine seem to be deteriorating at a rate faster than initially believed.
values (for those interested)
WBC 2.2 (4.5 - 10.8) critical value checked, called and verified by read back to (Trish's MOM?! thats a bit weird...Andrea is the only one who will understand that.) at 1205
Platelet 87 (150-400)
and my creatinine is 1.9, up from 1.4 in January. up from .9 last july. Normal is .8. on my way to kidney failure...... scared as hell. GFR is 31 or 32, 25 is ESRD.
i'm really freaking out. and i'm pissed that i didn't do more (?! what could i do?) wasn't more vigilant about this stupid kidney disease. Please look up Focal Segmental Glumerulosclerosis (aka FSGS). I want to do the kidney walk this fall.
I've already lost my biological mother to this disease, my little sister went into failure at 17 (6 years ago, since has a transplanted kidney via biodad), brother at 20 a month ago, he's on dialysis. My brother Jimmy (24?) and sister Kori (25?) ? have incredibly high blood pressure /other markers (proteinuria), and are terrified to take that leap into finding out if they have the disease. That leaves one full blooded brother that I'm not in contact with that I don't think has presented with symptoms. one half sister on my biomoms side that I don't know what she does.
I really just think its just the genes of my mother and father, its dominant and blablabla
The kids nephrologist is asking my biosister to see if they can do genetic testing to see WHAT our actual genetic malformation is, or are? idk. Hopefully, she will do this.......
I wonder if this has any affect on the reason Meghan had her stroke.
I don't want to have/be tested for leukemia again. I was this sick before, its why I left downingtown high school and went to upattinas to do homeschool.
Please send positive energy etc toward me and my family at this time. I'm really feeling low, down, and out. Everything is piling up on me, and I'm trying not to sound like a martyr. I'm just overwhelmed and over stressed.
Terrified of dialysis. Terrified of fistulas (seen one recently, scared the ish out of me) terrified of dialysis wards (thinking of doing at home dialysis, or even peritoneal dialysis (aka bag exchange) but I think I'd have to get rid of my animals. or like quarantine myself idk. I had a friend who's dad did that.
ok, sorry for ranting. just so scared. PS my albumin is low, I missed that page.
Wednesday, June 16, 2010
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1 comments:
hey. this is monica from the best buy in king of prussia. how are u. hows maghan doing? did u enjoy the event sat?? hopefully u did. Im jus writing to tellu how much of a joy maghan is. like she made my day she was full of soo much life and energy. I hope that the both of u will comw back to visit us again soon. I wish that I had the chance to say bye to ya'll. but there was no need cause good bye is to permanet. Im sorry that u have to take all these test and sorry bout the lost of ya mother.
:( i hope that everything is ok in the end.
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